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Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of ‘My Choices’

Noyes, J. and Hastings, R.P. and Lewis, M. and Hain, R. and Bennett, V. and Hobson, L. and Spencer L.H., (2013) Planning ahead with children with life-limiting conditions and their families: development, implementation and evaluation of ‘My Choices’. BMC Palliative Care, 12 ((5)). DOI: 10.1186/1472-684X-12-5

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Abstract

The United Kingdom has led the world in the development of children�s palliative care. Over the past two decades, the illness trajectories of children with life-limiting conditions have extended with new treatments and better home-based care. Future planning is a critically under-researched aspect of children�s palliative care globally. This paper describes the development, implementation and evaluation of innovative child and parent-held palliative care planning resources. The resources were designed to facilitate parent and child thinking and engagement in future planning, and to determine care preferences and preferred locations of care for children with life-limiting conditions from diagnosis onwards. These resources fill a significant gap in palliative care planning before the end-of-life phase.

Item Type: Article
Subjects: Research Publications
Departments: College of Health and Behavioural Sciences > School of Healthcare Sciences
College of Health and Behavioural Sciences > School of Medical Sciences
Date Deposited: 09 Dec 2014 16:45
Last Modified: 23 Sep 2015 03:08
ISSN: 1472-684X
URI: http://e.bangor.ac.uk/id/eprint/982
Identification Number: DOI: 10.1186/1472-684X-12-5
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